Sunday, November 15, 2009

Here We Are

Well, we made it. The flight in was uneventful, which I always like to be able to say about airline flights. We made it to the hotel, as well. My only problem was when the taxi driver asked for payment...wait, do you tip a taxi driver? I movies they always say, "keep the change". Last year Chuck handled this part and I didn't think to ask him. Finally, the taxi driver said, "how much tip"? Ok, now I know that you tip taxi drivers, but how much? So, I decided on $10.00 on a 59.00 taxi bill. So, for those of you "taxi savvy" people out there, how did I do?

The hotel was nice and was the restaurant that we found open at 10:00 p.m. at night. Ironically, it was a western themed place, which I thought was funny...since we had come in from the "west"! Maybe I was just tired.

Scott lost a tooth in the hotel that night...the tooth fairy found him. Not to worry.

The next day we had anticipated a wonderful day of sight seeing and some shopping. As soon as we got the Air and Space Museum, Scott started complaining about not feeling well. Since, it was our only day totally free to sight see, we really didn't want to head back early, so we took a break and he started feeling better.

On the Metro (subway) ride back to the Children's Inn (at NIH) he was fine. Then just as we got off he said that he needed to throw up. Poor guy, at least we found a trash can! He felt awful the entire night, but woke up this morning his normal, happy hungry self! Thank God! He does answer prayer! Please be praying that Cynthia and myself don't get it!

This afternoon we got him checked into the clinical center. Last year while here we had the best nurse, her name is Anne, and we had hoped that she would be here this year. When we got into the pediatric unit, hers was the first face we saw. We were very happy and she said that when she saw Scott's name, she made sure that she was our nurse. See, He does answer prayer!

This year, Scott is sharing a room with a boy from Michigan (or was it Wisconsin) who has recently been diagnosed with McCune-Albright Syndrome. It is there first time here, I remember how it felt last year, so please be praying for Tyler and his family.

Well, I need to sign off, just wanted to give you an update and say thanks for all your prayers!