Tuesday, October 13, 2009

It's been a long time...

It has been such a long time since my past post about Scott, I thought I would bring everything up to date!

We have had good news. Since we began daily shots at home as well as the monthly "big shots" that we get at the doctor's office we have seen a dramatic decrease in the levels of growth hormone. Last summer when he was first diagnosed with McCune-Albright Syndrome his levels were 1700, for a 7 year old boy they should be between 58 - 278 (roughly). When we got the latest lab results the numbers where down to 158! Praise God!

His growth has slowed down dramatically! Only one pair of shoes in the last several months! Which since he's a size 10 1/2 men's now, that's really a good thing! It's hard to find "cheap" shoes in men's sizes!

We are gearing up for this years visit to NIH (National Institutes of Health) in Bethesda, Maryland. We will be leaving on Friday, November 13th. This year my sister, Cynthia (see blog post from October 29, 2008 for more on my lovely sister!) will be going with Scott and I. Chuck and Ashlyn will be holding down the fort at home.

I will keep my blog updated and also my Facebook status with information while we are in Maryland. Also, I will have specific prayer requests posted here.

Thank you so much for reading and for your prayers!

Dian

1 comment:

Kristi Bowers said...

thanks for the update. still praying