Tuesday, August 19, 2008

One More Step

Today Scott had the first of two tests involving his thyroid. Tomorrow he'll have the second part and a nuclear bone scan. Also, today we went to a Geneticist. We learned a little more information and got some more answers about McCune Albright Syndrome (MAS). We also learned that MAS is not inherited but a gene mutation and that we shouldn’t worry that Ashlyn might have the same syndrome. Praise God!

We have a couple more doctors’ appointments this week. One with our endocrinologist, which after this visit I expect we'll have a lot more answers and hopefully a plan. On Friday we go to an orthopedic surgeon and review the bone scan to see if Scott has any lesions on the bones in his body.

We are still waiting on the referral to the neuro ophthalmologist and a call back for an appointment to see the oncologist.

Scott has been such a trooper and has been very good with all these tests and appointment.

Please keep praying that we get directed to the right doctors and that everything continues to move forward.

2 comments:

Anonymous said...

Praise God for more answers and being one more step closer to a plan!!! Thanks for the update!!! Love to you all - Larissa

Kristi Bowers said...

Still praying, my bible class asked about you yesterday! Good luck with all the appointments!